The written word
By MP on Monday 18 September 2006, 13:13 - Background - Permalink
Over a year ago Derek sent dad an email, describing a meeting he'd attended in England. Several people at the meeting remembered dad in his professional capacity and asked after him. Derek thought dad would like to know.
Dad printed out Derek's email and read it many times over several days. He kept saying that he would write a reply, but never did. He delayed so long that I stepped in, encouraging him to sit at the keyboard and make a start. After many more days of procrastination he eventually did as I suggested, but it took him several minutes just to get the first three or four words on the screen. I swapped seats with him and took dictation. It was the last letter dad came close to writing.
Something funny has happened to his ability with letters. When he writes by hand, about every fifth letter is missing (when he types, he never gets anywhere because when he spots an error he frequently backspaces too far and erases good text along with the bad.)
Watching odd fragments of words (always in capitals nowadays) struggling to appear on dad's pieces of card is very strange - it is an intimation of something not quite right, a program with a bug, or a hand working without the guidance of a brain.
After seeing my dad fight to put together a shopping list, I once wrote out
a reusable one for him. It has about eight items on it and if, when he got to
the shops, he bought everything on the list it would do no harm. Instead, he
looks at it, puzzles over where it came from, loses it for days on end, often
tries to copy some of it to another list, gets lost halfway, then finds an old
list from a previous day and cannot remember which was the one he was working
on, starts again and ends up with something like:
'CA FOOD'
That's cat food, by the way - yes, all by itself. He will then take this to the
shops and buy bread and milk.
Dad's signature is still fairly good, just a little shaky. Mum's, on the other hand, is an elusive thing. She needs to be prompted letter by letter, often requiring examples. Even with a copy in front of her, she is sometimes unable to sign her name. Like dad, she also seems to be resorting to capitals most of the time. We obviously signed the enduring power of attorney forms just in time; I just wish I knew where we put them.
Every now and again, usually when we are at the doctor's, mum manages a good signature. Sometimes she just looks helplessly at us and tries to explain that she can't do it. Other times, something strange appears on the paper: homophones, anagrams, etc. I wish I'd kept copies, they look so odd. They are so close to being right, but so terribly wrong.
In my studies, I came across some deeply odd conditions. One of them is 'alexia without agraphia'. This is the inability to read, whilst retaining the ability to write. In other words, sufferers can write something down correctly, but are then unable to read it. How can this be, you're tempted to ask, but the answer is that a malfunctioning brain is not just a good brain with a small problem, it can give rise to a radically different consciousness in which all bets are off, nothing is obvious any more, and distinctions between real and unreal have little meaning. Being able to see letters, and knowing the structure of words is, so it turns out, not enough to be able to read.
We've tried to help mum and dad by putting signs in the house. For example, they could never find the cat food, so I put a sign 'CAT FOOD IS IN HERE' on the appropriate cupboard. It didn't work. After a while mum asked dad to take it down. She didn't like it.
I left a card on the table for dad, explaining how many fibre tablets to take each day. It said 'DON: TAKE TWO TABLETS WITH EACH MEAL'. He called several times a day to ask if WITH meant before, after, or during. I toyed with the idea of making the note more specific, using AFTER instead of WITH, but then I thought perhaps this would simply result in questions about how long 'AFTER' actually implied, or debates about why it was once OK to take tablets before meals but now they had to be taken after.
It is these situations that make you marvel at how well we normally communicate, drawing on vast reserves of common knowledge and shared experience. When these resources start to fail, language doesn't really compensate.

Comments
The reading question is very interesting. My father spends hours with "reading matter" held up in front of his face. I have no question that this is a sign meaning: "I am here and ready for whatever should arise; I am not absent." (Even though he is, of course, absent for all practical purposes.)
He was unable to follow a beautifully printed label saying "Take pill with breakfast." I would put one pill in the neat little container with that label each evening before leaving. The pill was to be taken the next morning. Just didn't work. The pill would be taken immediately, or perhaps never, but never at breakfast.
Still, he can READ ALOUD with great facility the most complex paragraphs on any abstruse subject, and enjoys doing that. He'll do it for as long as anyone will listen, and even longer.
But no comprehension, and no interest, in actually reading ANYTHING, which is terrible, since that used to be his great passion and pleasure.
Mike--Whenever I read a caregivers' guide that suggests putting up signs as a solution to memory failures, I just sigh. I've had the same problems with my mother. After you get past the frustration, though, it is very interesting to consider how complex our daily communication actually is. Somebody sent me an email recently that contained one sentence and you were supposed to count the f's in the sentence. I got it wrong the first time. We "see" certain words more explicitly than others--but common words are almost like symbols to us, we identify them so quickly. I wonder if that's one of the familiarities our parents are losing--something so subliminal that we don't think about it. I've mentioned this in my blog--my mother often can't find the correct word for an object but will come up with a substitute word that refers to something resembling the original. Tonight she asked me if I'd given her "the beads"--I knew that she meant her pills because she asks me that question every night. But her substitutions are intriguing.
Redcedar
What you say is quite fascinating. The ability to read and comprehend and recite is obviously a bundle of several abilities working in unison; one can fail yet the others can remain. Coincidentally, my father still thinks it is OK to read things aloud to us, emphatically stressing key words. We all hate it, a) because we can all read b) his stresses make it sound as if he is talking to a half-wit c) it is usually uninteresting stuff anyway. 'For as long as anyone will listen, and even longer' - exactly! And yes, the lack of interest to read anything properly is another sad charactersitic our fathers share.
Deborah
I know the test you speak of. I've used it in my work several times. There's another at:
http://www.physics.umd.edu/lecdem/s...
http://www.soon.org.uk/humor/illusi...
I am sure you are right that the more subtle advanced reading skills go first. For example, experienced readers often only scan the middles of lines as they read down a page, they use peripheral vision, pattern recognition, or some kind of 'guessing' sentence-completion algorithm to fill in the words around those that they actually look at. I've noticed when I look at signs I usually look first at the centre, not the top left. This is most definitely not how my parents now read; they labour over each painful syllable.