Fading from Memory

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Saturday 27 January 2007

Dad's secret life

Rachel spoke to Gail, the manager of the day care centre. Gail divulged that dad often returns to the centre on Wednesdays, after the end of their session, on flimsy pretexts. It was only the most recent of his clandestine visits, when he told them there was no food in the house, that came to light, but now we know he has a secret life.

Rachel remembers occasions on which dad has returned from day care and then announced that he is going for a walk 'around the block'. She'd always thought this was rather odd - why would he want to go out when he had just been out for the whole day. It seems that these 'walks' may have been the occasions of his secret returns to the day care centre. I can just imagine him getting to the gate of the centre and hesitating, wondering whether he should go in, and then going in anyway because he knows he really wants to, even though he knows he has no real reason to be there.

On the other hand, dad is clearly not enthusiastic about going to day care on Mondays. I tried to get him to tell me whether he wants to go or not, but he prevaricated like you wouldn't believe. If he doesn't go this coming week, he will lose the option. Gail has already decided to take him off the list of Monday visitors.

It seems Gail is of the opinion that mum and dad should be in a home. Our case manager thinks the same thing, as does Sophie, the ACAT team member. I shall probably talk about this in the next post.

Monday 22 January 2007

Sunny day, clouded mind

I spoke to dad by phone today. He seemed much vaguer than normal:

'Dad, it's Mike. Why aren't you at day care today?'
'At what?'
'Day care.'
'Day care?'
'Yes. Echelon.' This is the name of the place.
'Oh, yes. I, I don't know. Maybe, maybe I overslept.'
'No, you didn't, because you called me at eight o'clock this morning.'
'Did I?'
'Yes.'
'Well, I go on a Wednesday.'
'You go on Wednesdays and Mondays, too.'
'Do I? When did that start?'
'Quite a long time ago.'
'It's very hot here.' This seemed to signal lack of interest in the subject of day care.
'Yes. Dad, you were worried about getting your pacemaker checked. The appointment has been fixed for next month.'
'My pacemaker?'
'Yes, you called about it this morning.'
'Oh, yes. You're looking after that are you?'
'Yeah, just leave that to me.'
'It's very hot here. Is it hot where you are?'
'Yes, it is.'
'It's very hot here.'
'There's nothing I can do about that.'

Well, at least he laughed at that.

I am a bit concerned at his apparent recent mental decline. If I look for reasons, I might blame the reduction of the Aricept dosage from seven days a week to five. Since the nurses now come more or less at lunch time (to catch mum in a 'waking' state) they have skipped Mondays and Wednesday visits, because dad is not there to mediate. Consequently, both mum and dad are getting a lower weekly dosage. Would such a reduction have a noticeable effect? I shall ask Dr Humerus tomorrow when I see her with mum.

Off on a tangent...

I mentioned dad's apparent loss of clarity, such as it was, to Rachel later on. She said that dad had called her earlier in the day and had appeared quite coherent. He wanted to ask her if they still made soap the old way, because he couldn't get used to this 'new stuff', meaning the sorbolene that I had installed in place of the drying, grey veined bars of soap that once lurked in all corners of the bathroom, laundry and kitchen. A few days ago he had tried to persuade me to switch him and mum back to good old bars of soap, but I'd resisted on that occasion. Today, Rachel did as I would have done, and conceded to him. We'll have to find other ways to use up the approximately two litres of sorbolene that I had positioned around the house.

I am surprised that so many of the social services' suggestions don't work:
  • sorbolene doesn't get used
  • the shower stool is placed outside the shower cubicle when dad showers, mum simply doesn't shower
  • the cat food dispenser is usually emptied, separated, and misplaced
  • signs get taken down without being read
  • food left around the house is just as likely to be secreted away or given to the cats
  • etc
Meanwhile the basics, house cleaning and food preparation, seem to be working quite well.

Wednesday 20 December 2006

Christmas party

Early this morning I checked in on dad. He was up before 6:00 and all dressed for day care. I'd seen him going into the shower last night, too. The webcam is proving extremely useful.

I made a call to him at 9:00, reminding him not to go to day care at the usual time. Before I arrived at about 10:20 he had called me back twice to ask what the new arrangements were.

Mum was fast asleep and I didn't give much for my chances of getting her up and out for a party in half an hour, but we did manage it. Of the 40 minutes it took her to get ready, over 30 were spent sitting on the bed fiddling with underwear.

Although five minutes late, we were among the early ones. We were ushered into the nursing home adjacent to the day care centre - an anodyne, forbidding place of flourescent lighting, suspended panel ceilings, off-white palette, and characteristic odour. I didn't like it at all. The prospect of ending up in a place like that appalls me. I seriously would rather be dead. And that was before the festivities started.

Music was being strangled by a tinny portable stereo sitting on a table. Justifiably homicide, since it was all smaltzy ersatz muzak versions of Christmas standards. First item on the programme proper was a Christmas quiz. The quizmistress didn't understand half the questions, and mispronounced nearly all of them. One chap in the front row, porky and florid, kept making lewd suggestions to her. Dad jerked a foot towards him and leaned towards me.

'None of the blokes like him very much. Very uncouth.'

Quiz over, we all moved to the tables. I was not enjoying myself. Actually, it was an ordeal. Mum was still fairly composed, and dad was pretty much in his element, since he is familiar with nearly everyone there now. I was dreading the food. A picky eater at the best of times I was hoping that I wouldn't have to make excuses for not eating.

The fare was warm turkey, beef and ham slices, smothered in gravy, lightly roasted potato and pumpkin, processed peas, beans and carrots. A dollop of Cranberry sauce sat in a sea of gravy. I'm a vegetarian for a start. I don't mind cold food and I don't mind wet food, but I baulk at cold wet textures. I don't like gravy or Cranberry sauce. Pumpkin is edible as long as it is hot and salty. There was no salt on the table. Still, I was the first to finish. Some had barely started the random repositioning of food on the plate that seems to be a necessity in the later years.

Conversation was hard work, but I was more concerned with watching mum for signs of restlessness. She managed to eat all her lunch - quite an unusual feat for her. What she left, dad cleaned up anyway.

Next, we moved back to the lounge to listen to a latin quartet: marimba, accordion, guitar and singer. They managed passable versions of songs drawn from the repertoires of Glen Miller, Edith Piaf and Harry Bellafonte, notwithstanding arthritic guitar solos and toothless percussion. Only three or four of the audience fell asleep. The band redeemed themselves with quite a clever arrangement of Rodrigo's Aranjuez guitar concerto - surely one of the most achingly beautiful pieces of music ever written. While mum enjoyed the music she tapped her feet and kept the beat on the arm of her chair, but a few seconds later, when the band changed their tune, she might sit forward and start staring around with that 'what am I doing here?' expression. I could understand this. There were moments when I thought I was in a David Lynch movie, too. Soon, mum's restlessness got the upper hand and we had to beat a retreat.

Back home the house was cleaned (Alison was in today) and the lawn mowed (the lawnmower man made his monthly visit too). Cups of tea all round, and that, for 2006, was Christmas.

Tuesday 14 November 2006

Dramatis personae

I thought it might be useful to list our various medical and social services personnel - for reference. I might come back and update this particular post as time goes by.

Dr Cranium – Geriatrician

Gentlemanly and popular. It was he who broke the news that dad had Alzheimer's disease.

Dr Mandible – Proctologist

Avuncular. Got the run around when dad complained of constipation which seemed to be nothing more than not eating.

Dr Femur – General Practitioner

Cheerful, well-liked by dad. Gets things done.

Dr Anvil – Vascular Surgeon

Has only ever uttered 16 words in his entire life (nine of which were 'no'). Respected by other doctors.

Dr Patella – General Practitioner

Cheerful, trusted by mum, but not apparently by the social services. Very happy to make house calls.

Dr Radius – Opthalmologist

Appears always to be in a bad mood. As a result of which may no longer be getting our business.

Dr Humerus – Psychogeriatrician

Young and considered something of a star by the social services. Next to impossible to contact.

Dr Sacrum – Dentist

Helpful when needed, though this appears to hardly ever be the case.

Dr Sternum – Opthalmologist

Has looked after mum OK. May get to deal with dad too.

Dr Ilium – Cardiologist

Assured but socially shy. Turned dad into a bionic man with a pacemaker.

Dr Tibia – Dermatologist

Quite elderly, but smoothe and ready to chat.

Lana – Case Manager

Cares about mum and dad, but seems unable to provide someone mum really trusts. Has lately seemed to be losing her composure.

Pauline – Careworker extraordinaire

Left work to look after her own family (and demented mother). Appears to have been irreplacable.

Gail – Careworker now also gone

Never quite filled Pauline's rather large shoes. Had trouble finding mum's soft spots.

Gail – Day Care Centre Manager

Tried perhaps too hard to get mum involved, but does a great job of looking after dad on Wednesdays. Brisk and old world in style.

Sophie – Aged Care Assessment Team

The person who decides whether mum and dad are in need of low care (they are) or high care (probably not yet). Extremely gentle in manner.

Diana – Aged Care Assessment Team

Says little, but says what matters. A person I can work with.

Nancy – Sydney Home Nursing Service

Bright and clear thinking. Someone I can work with.

Patrice – Sydney Home Nursing Service

Stubborn and self-important with flashes of a pleasant personality which she does her best to hide. Has made a bad impression on us from day one.

Alison – Careworker

Sneaks into the house while mum is being entertained elsewhere, and leaves it sparkling.

Carol – Careworker

Does the Friday evening meal for mum and dad. Seems great.

Jennifer – Careworker

Does the Monday evening meal for mum and dad. Also seems great.

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